Researcher Information

Researchers can find study information by following the links below:

• Surveys
  • Phase 1
  • Phase 2
  • Phase 3
• Medical Records/Pathology (Phase 3 only)
• Genotyping Information (Phases 1 and 2 only)
• Biospecimen Description

Surveys

Phase 1 – enrollment date from 1993 to 1996

• Carolina Breast Cancer Study – Phase 1, Questionnaire
• CBCS – Phase 1 & 2, Data Dictionary for the Analysis Dataset
• CBCS – Phase 1, Baseline Survey – Codebook

Phase 2 – enrollment date from 1996 to 2001

• Carolina Breast Cancer Study – Phase 2, Questionnaire
• CBCS – Phase 1 & 2, Data Dictionary for the Analysis Dataset
• CBCS – Phase 2, Baseline Survey – Codebook

Phase 3 – enrollment date from 2008 to 2013

Summary

• Overview of What Types of Questions CBCS3 Asked and When We Asked Them
• CBCS3, Baseline and Follow-Up Survey Characteristics, Response Rates

Baseline

• CBCS3, Baseline Questionnaire
• CBCS3, Data Dictionary for the Analysis Dataset
• CBCS3, Baseline Survey – Table of Measures
• CBCS3, Baseline Survey – Codebook

Follow Ups

• CBCS3, Follow Up #1 (9-Month): Telephone Survey
• CBCS3, Follow Up #2 (18-Month): Telephone Survey
• CBCS3, Follow Up #2: Appendix A Survey – Table of Measures
• CBCS3, Follow Up #2: Appendix A – Mail-In Survey
• CBCS3, Follow Up #4 (38-Month): Telephone Survey
• CBCS3, Follow Up #6 (66 Month): Telephone Survey
• CBCS3, Follow Up #7 (7 Year): Telephone Survey
• CBCS3, Follow Up #7/#6: Appendix B – Mail-In Survey
• CBCS3, Follow Up #9 (9 Year): Telephone Survey
• CBCS3, Follow Up #10 (10 Year): Telephone Survey
• CBCS3, Follow Up #10: App C – Mail-In Survey
• CBCS3, Follow Up #10: Cancer Survivors’ Unmet Needs (CaSUN) Survey
• CBCS3, Follow Up #10: Patient Activation Measure 13 (PAM 13) Survey

Medical Records/Pathology

Phase 3

• CBCS3, Medical Records Abstract Form
• CBCS3, Medical Records Abstract – Path Report
• CBCS3, Medical Records Abstract – Data Dictionary
• CBCS3, Medical Records Abstract – Derived Variables
• CBCS3, Pathology Report Abstract – Data Dictionary
• CBCS3, Central Pathology Review – Data Dictionary
• CBCS3, Central Pathology Review – Version 4

Genotyping Information

Phase 1 & 2

• Carolina Breast Cancer Study – Phase 1 & 2, Genotyping Data Summary
• Carolina Breast Cancer Study – Phase 1 & 2, List of SNPs 

Biospecimen Description

Click here for an overview of the rationale and methods for CBCS’s biospecimen collection and analysis. A downloadable version is available here.