For Participants
Endometrial Cancer Support Groups
You are not meant to endure cancer alone. If you are interested in becoming connected with other people affected by endometrial cancer or getting emotional support and financial assistance, check out these cancer support groups for people with endometrial cancer:
1 of Us is a Raleigh, NC-based support group assisting breast and gynecological cancer patients in North Carolina who are in financial crisis. The group is partnered with UNC Hospitals in Chapel Hill, NC and regularly hosts local annual gathering events for women with cancer. For more information, please visit 1ofus.org
The Hope Chest For Women, Inc. supports women living in 22 counties of Western NC and diagnosed or at risk for breast and gynecologic cancer. The group provides financial assistance to women who are battling breast or gynecologic cancer and residing in Western NC. For more information, please visit hopechestforwomen.org
ECANA advocates for any African-American woman affected by endometrial cancer and hosts national annual conferences for researchers and patient ambassadors. The group also provides educational materials for endometrial cancer patients. For more information, please visit ecanawomen.org
Comprehensive Cancer Support Program
The UNC Lineberger Comprehensive Cancer Support Program helps patients during cancer treatment, recovery, and survivorship. UNC Lineberger is the only public National Cancer Institute-designated comprehensive cancer center in North Carolina.
The Patient Family Resource Center connects patients to support, education, and related resources. It also offers services such as financial aid referrals, a boutique for wigs and head coverings, and relaxation rooms. The PFRC is located on the ground floor of the N.C. Cancer Hospital in Chapel Hill, NC.
Additional cancer support services can be found at healthcare facilities throughout North Carolina:
Atrium Health: Cancer Support & Survivorship Programs
Cape Fear Valley Health: Cancer Center Support Services
Cone Health: Cancer Support & Wellness Services
Duke Health: Cancer Support Services
Mission Health: Support Services
Novant Health: Support Center
UNC Health: Comprehensive Cancer Support Program ; Patient Family Resource Center
UNC REX Healthcare: Support Services
Vidant Health: Programs & Support
Wake Forest Baptist Health: Cancer Patient Support Program ; Psychosocial Oncology Program ; Cancer Survivorship Clinic
*If you know of additional cancer support services at healthcare facilities in North Carolina that you’d like listed here, please let us know using our online contact form.
Frequently Asked Questions
Why are we contacting you?
By law, all newly diagnosed cancer cases are reported to the North Carolina Central Cancer Registry. The Registry can provide qualified researchers with some of this information as long as they let the person’s doctor know about the study first. We checked with your doctor before contacting you. You may choose not to participate.
Why is my information important?
To learn more about a disease it is important to study people who already have it. Although this research may not help you directly, your information may help to learn more about survivorship after endometrial cancer and why some people have different outcomes and experiences. It is our hope that this information will help reduce endometrial cancer burdens and lead to improved outcomes and survival in future generations.
Why am I important?
If you were asked to participate, it means that you were selected to represent adults in North Carolina of your race and age group. We use a random selection process to make sure that our study participants accurately represent ALL adults with endometrial cancer in their race and age group. Therefore, once you have been asked to participate, no one can fill your place without affecting the quality of the study.
Why is the study “oversampling” Black women?
“Oversampling” refers to enrolling participants from a group of people at a rate higher than that group’s share of the population. This is an important technique. It enables CECS researchers to gain a fuller sense of the experiences of Black women with endometrial cancer and to see differences within Black women and differences compared to non-Black women that would have otherwise gone unnoticed. CECS’s success will come from its participants, who graciously agree to share their lives with us.
What is the difference between this study and a clinical trial?
Unlike a clinical trial, we will NOT ask you to take drugs or medicine of any kind and we will NOT treat your endometrial cancer. Your decision about participating will not change your relationship with your doctors, the treatment they recommend, or the medical care you receive.
What does it mean to participate?
If you agree to participate, you will be part of the largest study of endometrial cancer in the South, one of the first studies to include significant numbers of Black women, and the first study to look at different subtypes of endometrial cancer.