For Participants

We Need Your Help!

Your participation, the stories you tell us, and the information you provide to us are so important. We hope that you will take part in the interviews for our study. With your help, we may be able to answer some important questions and better understand how to improve the lives of people with endometrial cancer in North Carolina.

We hope that you will say “yes” to this study!

Please contact us with any questions about this study at 866-927-6920 or through our online contact form.

This is not a clinical trial. We will not ask you to take any medicine, and participating will not change your cancer treatment in any way. Your decision about participating will not change your relationship with your doctor, the treatment they recommend, or the medical care you receive.

Participant Newsletters

Volume 1

Volume 2

Volume 3

Volume 4

Frequently Asked Questions

Why are we contacting you?

By law, all newly diagnosed cancer cases are reported to the North Carolina Central Cancer Registry. The Registry can provide qualified researchers with some of this information as long as they let the person’s doctor know about the study first. We checked with your doctor before contacting you. You may choose not to participate.

Can I enroll?

Enrollment is by invitation only. We are only allowed to enroll someone if the North Carolina Central Cancer Registry has given the study their name. If you have received a letter from the study or a phone call from our Recruitment Specialist, you have been invited.

Why is my information important?

To learn more about a disease, it is important to study people who already have it. Although this research may not help you directly, your information may help to learn more about survivorship after endometrial cancer and why some people have different outcomes and experiences. It is our hope that this information will help reduce endometrial cancer burdens and lead to improved outcomes and survival in future generations.

What does it mean to participate?

Participating in the study is easy! Soon, you’ll be contacted by one of our study staff to answer any questions you may have about the study. If you decide to participate, we can either conduct an interview during this call or schedule a call-back time. You may also complete the survey by mail or online. Telephone interviews will be scheduled on a day and time that works best for you (weekday, evening, or weekend). The survey includes questions about your family history, medical history, lifestyle, access to care, and cancer treatments. You do not need to answer all of the questions, but we hope that you will. The survey questions may take 45 minutes.

We will also ask you if we can mail some consent forms for you to sign and return, so that we may obtain your medical records and a stored tissue sample from your diagnosis/treatment of endometrial cancer. This should only take 10-15 minutes. You will also be asked to provide a saliva sample using a self-collection kit that you can complete through the mail.

With your permission, study staff will follow up with you by telephone or mail every year or so for approximately 5 years to update your treatment history and quality of life measures. You do not have to take part in the follow-ups. If you do, each follow-up contact will take about 20-30 minutes.

Will I receive compensation?

You will be paid $40 if you complete the survey. You will be paid an additional $30 if you provide consents for us to obtain copies of your medical records and stored tumor tissue samples, and $40 when we receive a completed saliva self-collection kit. Additional payments will be made for follow-up contacts and if we need to obtain additional medical records or tumor tissue, you will receive $15 for returning consents for updated medical records and $15 for consent to obtain additional tumor tissue samples.

Why am I important?

An invitation to participate means that you were specially selected to represent adults in North Carolina. Therefore, once you have been asked to participate, no one else can fill your place without affecting the quality of the study.

What is the difference between this study and a clinical trial?

Unlike a clinical trial, we will NOT ask you to take drugs or medicine of any kind and we will NOT treat your endometrial cancer. Your decision about participating will not change your relationship with your doctors, the treatment they recommend, or the medical care you receive.

How do I complete the saliva kit collection?

Click Here for an Instructional Video

Endometrial Cancer Support

You are not meant to endure cancer alone. If you are interested in becoming connected with other people affected by endometrial cancer or getting emotional support and financial assistance, check out these cancer support groups for people with endometrial cancer:

1 of Us is a Raleigh, NC-based support group assisting breast and gynecological cancer patients in North Carolina who are in financial crisis. The group is partnered with UNC Hospitals in Chapel Hill, NC and regularly hosts local annual gathering events for women with cancer. For more information, please visit 1ofus.org

The Hope Chest For Women, Inc. supports women living in 22 counties of Western NC and diagnosed or at risk for breast and gynecologic cancer. The group provides financial assistance to women who are battling breast or gynecologic cancer and residing in Western NC. For more information, please visit hopechestforwomen.org

ECANA provides supports for any African-American woman affected by endometrial cancer and hosts national annual conferences for researchers and patient ambassadors. The group also provides educational materials for endometrial cancer patients. For more information, please visit ecanawomen.org

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Hospital-Based Cancer Resource Programs

Lineberger Comprehensive Cancer Support Program

The UNC Lineberger Comprehensive Cancer Support Program helps patients during cancer treatment, recovery, and survivorship. UNC Lineberger is the only public National Cancer Institute-designated comprehensive cancer center in North Carolina.

The Patient Family Resource Center connects patients to support, education, and related resources. It also offers services such as financial aid referrals, a boutique for wigs and head coverings, and relaxation rooms. The PFRC is located on the ground floor of the N.C. Cancer Hospital in Chapel Hill, NC.

Additional cancer support services can be found at healthcare facilities throughout North Carolina:

Atrium Health Levine Cancer Institute Department of Supportive Oncology

Services include Integrative Oncology, Nutrition, Patient Navigation, Rehabilitation, Survivorship, Psycho-oncology, Senior Oncology, Palliative Medicine, and Support Groups.
Locations include LCI’s Charlotte, Concord, Pineville, Union, and University centers.
E-mail: LCISupportiveOncology [AT] AtriumHealth [DOT] org
(980) 442-2500

For Financial Assistance, go to this website or contact Patient Customer Service at (704) 512-7171 or (844) 440-6536.

Atrium Health Wake Forest Baptist Medical Center Cancer Patient Support Program

Services include a wide range of counseling, therapeutic, and support services. Sister program to the Psychosocial Oncology Program.
(336) 713-6954

For Financial Assistance, use the application linked here.

Cape Fear Valley Health Cancer Center

Services include public welfare programs application assistance, referrals to community agencies, assistance with Friends of the Cancer Center (financial support), transportation and prescription resources, and education.

Cone Health Cancer Support & Wellness Services

Services include patient and family support, the Alight Program for Breast and GYN Cancer Support, appearance and self-image assistance, financial advocacy, Healing Touch, massage, nutrition, Hirsch Network support programs, palliative, psychological and spiritual support, and wellness and rehabilitation.
Locations include Moses H. Cone Memorial Hospital, the Doris S. Tanger Center for Patient and Family Support at Cone Health Wesley Long, and Alamance Regional.
(866) 822-8740

For Financial Assistance, learn about their programs here.

Duke Health Cancer Support Services

Services include support during and after cancer care (e.g., wigs and scarves, salon, make-up; survivorship support, physical rehabilitation, recreation therapy, etc.), for children and teens (Child Life Services), support for mind and spirit, and support groups.
Locations include the Durham, Cary, and Raleigh cancer centers.
(919) 684-4497

For Financial Assistance, apply for Charity Care with the application linked here.

Mission Health Cancer Support Services

Services include support during and after cancer care like financial counseling, chaplain care, rehabilitation, nutritional guidance and care for your emotional well-being.

Novant Health Cancer Institute (Greater Charlotte) Buddy Kemp Support Center

Services include support groups and counseling, spiritual support, financial support, etc.

UNC Health Mary Anne Long Patient and Family Resource Center

Services include an education center, relaxation therapy room, boutique, kitchenette, conference room, and referrals for financial assistance.
(984) 974-8100

For Financial Assistance, apply for Charity Care via My UNC Chart or by calling (866) 704-5286 or (984) 974-3425.

UNC Lineberger Comprehensive Cancer Support Program

Services include Caregivers Support, Mental Health and Emotional Support, Financial and Legal Assistance, Survivorship, Health Coaching and Physical Activity, Integrative Medicine, Nutrition, and more. The website details support provided by the CCSP and links to outside agencies that provide support, too. The Patient and Family Resource Center in the NC Basnight Cancer Hospital falls under this program’s umbrella.
(984) 974-8100

UNC Rex Support Services

Services include patient navigation, social workers, nutrition, DigniCap Scalp Cooling system, financial counselors, cancer rehabilitation, wellness and support groups, and valet services.
(919) 784-3105

Vidant Health/ECU Health Cancer Care

Services include psychotherapy, support groups, complementary therapies (and partnerships with the community).
Locations in Greenville and Beaufort with limited services also in Tarboro, Roanoke Rapids, and Nags Head.
(252) 847-9450

For Financial Assistance, call (252) 847-4472 or (800) 788-4473.

Wake Forest Baptist Cancer Patient Support Program

Services include Support groups, Mental Health and Emotional Support

Additional Health Care and Social Services Resources

NCCARE 360 Get Help

If you are located in North Carolina and need health care or social services, such as housing, transportation, or food, they can help!

Use the self-serve navigation tool to search the complete NCCARE360 directory without sharing your personal information. Or, submit an assistance request form to be referred to local resources near you.

American Cancer Society Resource Directory Search Here  Or call the 24/7 Helpline 1-800-227-2345

Find resources to help you and your loved ones manage your lives through treatment and recovery, and get the emotional support you need.

In addition to American Cancer Society programs and services, we can also help connect you to additional free or low cost resources from other organizations.

United Way 211 Directory Search Here  Or Dial 211 to call the 24/7 Helpline

Thousands of staff and volunteers across the country make sure 211 is available 24/7 to help you or someone you care about access caregiving resources, food assistance, disaster recovery, etc.

*If you know of additional cancer support services at healthcare facilities in North Carolina that you’d like listed here, please let us know using our online contact form.