St. Jude Children’s Research Hospital
Justin Baker, MD, FAAP, FAAHPM – Dr. Justin Baker is Chief of the Division of Quality of Life and Palliative Care in the Departments of Pediatric Medicine and Oncology at St. Jude’s Children Research Hospital. As a pediatric oncologist, palliative care physician, member of the ethics committee and Phase I and end-of-life care clinical investigator, Dr. Baker is intimately aware of the distress experienced by children and AYA with advanced cancer and the ethical and bereavement issues surrounding their disease progression. Dr. Baker currently serves as the Director of the Division of Quality of Life and Palliative Care at St. Jude as well as the medical director of their Quality of Life Service – the St. Jude palliative care team. Dr. Baker also serves as the Director of their Pediatric Hematology/Oncology fellowship program. His research interests include ethical considerations surrounding enrollment in Phase I clinical trials, integrating palliative care into the ongoing care of children with cancer, AYA palliative and end-of-life care as well as pain and symptom control in the context of pediatric oncology care. Dr. Baker has participated in more than 25 studies related to pediatric palliative care and has authored numerous manuscripts and book chapters on the topics ethical decision making as well as other palliative care subjects within the context of pediatric oncology.
Jami S. Gattuso, MSN, RN, CPON – Jami is a Nursing Research Specialist in the Office of Nursing Research at St. Jude Children’s Research Hospital in Memphis, TN. She received a BS in Natural Science from Christian Brothers University (Memphis, TN) in 1983 and a BSN (1985) and MSN (1989) from the University of Tennessee, Memphis, College of Nursing. Jami has served in a variety of nursing roles at St. Jude Children’s Research Hospital since 1986. Her research interests include symptoms, quality of life, fatigue, sleep and end-of-life care issues in pediatric hematology/oncology and she has a particular interest in qualitative research.
Deborah Gibson, MA – Deborah received a Bachelor’s degree in Anthropology from the University of TN-Knoxville, and a Bachelor’s degree in Liberal Studies, with a concentration in Psychology from Excelsior College in New York State. She also received a Master’s in Anthropology from the University of Memphis, with concentration in Medical Anthropology and an additional focus in Psychological Anthropology and Counseling. Her previous work focused on the role of culture in the treatment of pain among the elderly, the impact of stigma on end-of-life care for AIDS patients, the effects of alcohol use/abuse on AIDS patients’ long-term health outcomes, and the genetic and life-style factors involved in weight gain among kidney & liver transplant patients. Her current research interests lie in the intersection between culture and the provision of palliative, end-of-life &/or bereavement care, communication and medical decision-making, and mixed methods research methodology. She has worked at St. Jude Children’s Research Hospital since October 2011, currently holds the Certified Clinical Research Professional (CCRP) designation, and feels so privileged to now be a part of this exciting and important study!
Meaghann Weaver, MD – Meaghann Weaver is in her final year of pediatric oncology fellowship at St Jude Children’s Research Hospital and DC Children’s National Health Systems (she will then join the National Institutes of Health as a palliative fellow). Her main research interests include the inclusion of mixed methodology in cancer studies, global health interventions, adolescent perspectives, and symptom management metrics. Her favorite parts about PRO-CTCAE are the dynamic, fun team and the privilege of eliciting direct patient reported outcomes.