Alex’s Lemonade Stand Foundation is a foundation started by 4-year-old Alex, who launched a local lemonade stand to help support her cancer-related medical costs. Today, the foundation supports hundreds of cutting edge childhood cancer research projects, patient support resources, and travel for children with cancer and their families to receive the treatment that they need.
Project investigator Pam Hinds has been featured by Alex’s Lemonade Stand for her outstanding contribution to understanding pediatric patient outcomes.
The Center for Developmental Science is housed at the University of North Carolina-Chapel Hill and focuses on the advancement of human development as guided by the principals of Developmental Science.
Children’s Oncology Group (COG) is an NCI-supported childhood cancer clinical trials group focused on the biological elements of cancer, new treatments, patient care, and survivorship. COG consists of nearly 100 pediatric oncology clinical trials and over 8,000 clinicians.
The International Society for Quality of Life Research (ISOQOL) is an international society with over 600 members from 43 countries which promotes of the science of health related quality of life measurements.
The National Cancer Institute (NCI) is the largest institute of the National Institutes of Health (NIH) and is committed to conducting and supporting cancer research, training, education, and information dissemination.
- Adult PRO-CTCAE is an NCI-supported research project that is developing an electronic-based system for patient self-reporting of symptom adverse events (AEs). Find out more information on the PRO-CTCAE Fact Sheet.
- NCI’s Outcomes Research Branch provides useful resources and information to the public including outcomes tools, existing research, publications, as well as networks and working groups.
- NCI’s Division of Cancer Prevention (DCP) is NCI’s primary office which is committed to cancer prevention and supports domestic cancer research networks.
The Patient Reported Outcomes Measurement Information System (PROMIS), supported by the NIH, is a system of patient-reported measures that assess a patient’s physical, mental, and social well-being. PROMIS resources ask a patient questions about how they feel and what they are able to do with the aim of using this information to provide clinicians with a better understanding of the patient experience.
PRO-Core, the Patient-Reported Outcomes collection system for UNC Chapel Hill, maintains a survey system for administering and managing complex survey studies. PRO-Core provides scientific support to investigators regarding issues such as study design, selection of valid and reliable measures, optimal ways to administer surveys in your study population, and guidance on data analysis. PRO-Core uses a standard project development process to build each study-specific system, and can provide language for grant applications, protocols, consent forms, and IRB applications.
The Cancer Outcomes Research Program at the Lineberger Comprehensive Cancer Center of the University of North Carolina at Chapel Hill is comprised of an interdisciplinary group of clinicians, researchers, and advocates dedicated to furthering our understanding of and, ultimately, improving the quality of cancer care. CORP brings together faculty and trainees across the Schools of Medicine, Public Health, Nursing, Pharmacy at UNC Chapel Hill with expertise spanning diverse perspectives and disciplines.