Publications
Carolina Endometrial Study highlighted in National Institute of Health article for its contribution towards examining health outcome disparities in endometrial cancer.
The article states, “Unlike most other cancers in the United States, endometrial cancer has increased in both incidence and death rates in recent years. These changes reflect increases in aggressive (non-endometrioid) subtypes of uterine cancer, with endometrioid subtypes having remained fairly stable. Recent studies have shown that these increases are seen in all racial and ethnic groups. However, a 2019 study from NCI showed that Black women have the highest incidence rates and a 2022 NCI study showed that they have higher death rates and the poorest survival…The Carolina Endometrial Cancer Study seeks to address this gap in a clinical trial that analyzes endometrial tumors to identify genetic details and guide treatment strategies. Women from across the state of North Carolina will be recruited, with a goal of half the participants being Black.” Read the article and learn about what researchers across the country are doing to improve the diagnosis, treatment, and survivorship of endometrial cancer.
Carolina Endometrial Study home visit data used to explore feasibility of Lymphedema self-assessment.
This article, published in January of 2024 in “Cancer Causes & Control,” focused on lower extremity lymphedema (LEL), which causes swelling in the legs and feet and affects endometrial cancer survivors’ physical and mental health. Researchers used a questionnaire and leg measurements to estimate LEL incidence among 50 survivors enrolled in the Carolina Endometrial Cancer Study. They found that self-measuring leg circumference was challenging, with only 17 survivors completing it. The study showed that 54% of survivors had LEL based on the questionnaire, while 24% had it based on nurse measurements. The findings highlight the need for reliable LEL measurement methods and suggest using patient surveys to assess the impact on survivors’ quality of life.
Guidelines on acknowledging CECS data in your publication: